On Thursday Matt started "CYCLING" where they take him off the CPAP for 2 hrs and put him on LOW FLO for 2hrs each cycle. Then back on CPAP for 6hrs. This was his first go on low flo and he did well and last night he went well, so far so good. They will try and wean him off cpap altogether but it may mean he might come home on low flo we dont know yet if they will try and wean him off low flo as well. When we went and saw him yesterday morning he had just had his physio assessment and he did well, they said he liked it and we passed with flying colours he doesnt need any further treatment. So our little boy is doing so well and he is so happy most of the time. We are getting closer and closer to coming home but still a few weeks to go but we can see the end of the road which is good, then we start another journey of just loving this little boy as a family together at home.
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